Seven-year Englishwoman Holly Shaw suffers a rare disease - congenital bullous epidermolysis. Every day, she feels the pain of what her skin at the slightest touch blister and peel off, as in severe burns.
These children are called "butterflies" because their skin is fragile and delicate as butterfly wings. 's disease revealed the girl a few hours after birth, and all those seven years, Holly is trying to cope with the pain .
Parents are treated with daily skin daughter by special means, and taking a shower and even a change of clothes for girls are the real torture. Moreover - even her esophagus is unable to function normally, so she has to eat through a tube.
The treatment of this disease can only be palliative and the majority of patients rarely survive to 30 years. Syndrome makes them extremely susceptible to infections and minor consequences, in terms of healthy human injuries. However, the girl tries to live a full life - is engaged in horseback riding and riding on roller skates.
These children are called "butterflies" because their skin is fragile and delicate as butterfly wings. 's disease revealed the girl a few hours after birth, and all those seven years, Holly is trying to cope with the pain .
Parents are treated with daily skin daughter by special means, and taking a shower and even a change of clothes for girls are the real torture. Moreover - even her esophagus is unable to function normally, so she has to eat through a tube.
The treatment of this disease can only be palliative and the majority of patients rarely survive to 30 years. Syndrome makes them extremely susceptible to infections and minor consequences, in terms of healthy human injuries. However, the girl tries to live a full life - is engaged in horseback riding and riding on roller skates.
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